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Etanercept/Enbrel - how long does it last?
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Rank: Newbie
Groups: Registered
Joined: 2/13/2011 Posts: 1
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Hi - I have been injecting Etanercept for the past four years - it has given me back my life. During this time I have had no flares at all. The lack of pain enabled me to get on with my life. However last week I had a humdinger of a flare in my wrist and knuckles. I know that it may not work for ever (even though I hope it will) but I am frightened that this is the start of it not working as I can't bear the thought of going back to how I was before I started on it.
Has anyone been on Etanercept and it stopped wotking? - how did it start? etc. Am I worrying too much?
Thanks for your help. Ruth
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009 Posts: 176
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So sorry, but I have no knowledge of this. It must be a shock when you have been so well, to have such a flare. Phone the helpline, as they will have up to date info for you.
PS Welcome to the forum!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Ruth,
I am on humira and I still get flares, just not as many as before. Do you have a rheumatology helpline where you can ring and speak to a nurse?
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Ruth and Welcome
Sorry to hear that you have not been so good recently. I do not have any knowledge on Enbrel I am afraid. I hope you get the answers you require if not certainly give the NRAS helpline a call they are great. . .
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Ruth,
sorry to hear you are having a flare after such a long time,
i was thinking the same as Doreen ... can you contact your Rheumy Nurse, also perhaps a Depo injection might help you through this time.
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi Ruth!
Welcome aboard. I took enbrel for 3 yrs, it did suit me generally very well- in the end it wasnt working so well.
the rules have recently changed and you can swap from one anti-tnf to another. Im sure that is what the rheumatologist will look to do- there is a LONG list of alternatives available nowadays
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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PS is there a chance you could have an infection? prob best to get a blood test done at the GPs? You know that immuno surpressants will hide infection and your body might be having an inflammatory reaction to it.how to be a velvet bulldoser
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Etanercept/Enbrel - how long does it last?
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